Wednesday, November 26, 2008

Happy Thanksgiving

My family is the beginning of a very long list of things i'm thankful for, not only during the holiday season but everyday. This particular year (our first with the Rett Syndrome diagnosis) i feel as if i've counted each blessing twice. Naturally, there have been a lot of hard moments but we are lucky to be blessed and thankful. From our family to yours...Happy Thanksgiving!
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1 comment:

Kelly said...

I hope you and your family had an amazing Thanksgiving!!!

December 3, 2008 at 9:29 AM

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Please join us on Karlie's Rett Syndrome Journey ~ Until we find a CURE!

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I am four years old. Last year i was diagnosed with Rett Syndrome. Rett is the most physically disabling neurological disorder on the Autism Spectrum. I can't speak or use my hands anymore but i'm a very happy girl and my blue eyes speak volumes! Typically, Rett only affects females and strikes between 6-18 months. Less than 4,500 girls have been diagnosed in the US but many have been missed. Currently there is NO CURE but researchers are working hard and Rett was recently reversed in mice!!! Please join us in supporting funding for a cure. Please visit www.girlpower2cure.org and www.rsrt.org to donate. I was born healthy and developed as i should have. I could roll over, sit up, crawl, play with toys and i could even talk a little but then things started changing. My hands stopped working and i lost intrest in almost everything. Instead of laughing, i cried. My walking improved, but my words went away. I stopped playing with toys, i couldn't feed myself, i couldn't even scratch my own nose anymore. My world was changing around me. I knew it, but was helpless against it. This is my Rett Syndrome journey. Please donate $$$ to unlock my world and so many others!

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