Friday, November 21, 2008

A sad day for us...Karlie's last session of Speech therapy with Mrs. Kate

Karlie and Mrs. Kate reading Brown Bear, Brown Bear

video

Today we had to say goodbye to a friend. Karlie's awesome Speech Therapist is relocating and we just finished our last session with Mrs. Kate. The children she will work with in Colorado will certainly be blessed, but i can't help feeling sad for our loss. Mrs. Kate worked wonderfully with Karlie for the last year and a half. She quickly gained her trust and communicated with her better than any other therapist at this point. She has shared brilliant ideas and was successfully teaching my little one how to communicate with eye gaze. Mrs. Kate was also instrumental in making sure Karlie has the opportunity to use a high tech eye gaze system, the My Tobii. Her bubbly attitude and caring hugs will surely be missed and the poor girl who follows will have some mighty big shoes to fill in Karlie's eyes!

1 comment:

Brooklyn said...

Yeah!!! I did not know you were blogging! I am so excited! I am going to add Karlie's blog to Brooklyn's list of "Super Cool Rett Girls" :) I look forward to keeping up with the adorable Miss Karlie!!!

Please join us on Karlie's Rett Syndrome Journey ~ Until we find a CURE!

~During Vital Stim Therapy~

Want To Follow Karlie's Blog? ~ Click Here

My photo
I am four years old. Last year i was diagnosed with Rett Syndrome. Rett is the most physically disabling neurological disorder on the Autism Spectrum. I can't speak or use my hands anymore but i'm a very happy girl and my blue eyes speak volumes! Typically, Rett only affects females and strikes between 6-18 months. Less than 4,500 girls have been diagnosed in the US but many have been missed. Currently there is NO CURE but researchers are working hard and Rett was recently reversed in mice!!! Please join us in supporting funding for a cure. Please visit www.girlpower2cure.org and www.rsrt.org to donate. I was born healthy and developed as i should have. I could roll over, sit up, crawl, play with toys and i could even talk a little but then things started changing. My hands stopped working and i lost intrest in almost everything. Instead of laughing, i cried. My walking improved, but my words went away. I stopped playing with toys, i couldn't feed myself, i couldn't even scratch my own nose anymore. My world was changing around me. I knew it, but was helpless against it. This is my Rett Syndrome journey. Please donate $$$ to unlock my world and so many others!

~Sand between my toes~

~Emmaleigh & Karlie~