Thursday, December 11, 2008

~Riley and Karlie~Rett Friends Forever~

This pic was taken in Chicago at the Rett Syndrome Conference in May 2008. Someone once told me it reminded them of the theme song for Barbie's Princess and The Pauper movie..."You're just like me...i'm just like you". Aren't they just the sweetest little girls you've ever seen?
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2 comments:

Kelly said...

Yes they are....both SO precious. I love this picture!

December 12, 2008 at 7:49 AM
Anonymous said...

That is the sweetest picture! I love it, thanks for sharing!!

December 12, 2008 at 10:15 PM

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Please join us on Karlie's Rett Syndrome Journey ~ Until we find a CURE!

~During Vital Stim Therapy~

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I am four years old. Last year i was diagnosed with Rett Syndrome. Rett is the most physically disabling neurological disorder on the Autism Spectrum. I can't speak or use my hands anymore but i'm a very happy girl and my blue eyes speak volumes! Typically, Rett only affects females and strikes between 6-18 months. Less than 4,500 girls have been diagnosed in the US but many have been missed. Currently there is NO CURE but researchers are working hard and Rett was recently reversed in mice!!! Please join us in supporting funding for a cure. Please visit www.girlpower2cure.org and www.rsrt.org to donate. I was born healthy and developed as i should have. I could roll over, sit up, crawl, play with toys and i could even talk a little but then things started changing. My hands stopped working and i lost intrest in almost everything. Instead of laughing, i cried. My walking improved, but my words went away. I stopped playing with toys, i couldn't feed myself, i couldn't even scratch my own nose anymore. My world was changing around me. I knew it, but was helpless against it. This is my Rett Syndrome journey. Please donate $$$ to unlock my world and so many others!

~Sand between my toes~

~Emmaleigh & Karlie~